Comments on: EEG Results: I finally have answers to my questions about Caleb’s epilepsy. https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/?utm_source=rss&utm_medium=rss&utm_campaign=eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy faith, family, and travel Tue, 23 Jun 2020 12:36:30 +0000 hourly 1 https://wordpress.org/?v=6.8.3 By: aprilmomoffour https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/#comment-7892 Wed, 15 Jul 2015 16:08:13 +0000 http://storiesofourboys.com/?p=5568#comment-7892 In reply to Ah Dad….

Thank you!

]]> By: aprilmomoffour https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/#comment-7891 Wed, 15 Jul 2015 16:07:56 +0000 http://storiesofourboys.com/?p=5568#comment-7891 In reply to Karen.

That is SO interesting! Caleb is fortunate that his only happen in his sleep. I think it’s much easier that way. I like what you said about accepting your uniqueness. That is such and admirable attitude to have.

]]> By: Karen https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/#comment-7868 Wed, 15 Jul 2015 13:20:58 +0000 http://storiesofourboys.com/?p=5568#comment-7868 I have involuntary movements (jerks) with a normal MRI and EEG. Mine, unlike Caleb happen when I am awake and are absent when I sleep. I was diagnosed at age 4 with myoclonus dystonia. No explanation why I have the disorder and why I started showing symptoms randomly at age 4. I tried over 30 medications and nothing worked, expect alcohol. Two beers later and I can be still 🙂 However, one can not medicate on alcohol. I can sympathize with the frustration neurological disorders bring. I pray Caleb will remain seizure free, a little jerking at night is nothing big 🙂 I would pray so much when I was little my jerking would go away, now I embrace my uniqueness, and thank God I only have myoclonus and nothing major. However, I continue each day to pray hard neither one of my boys ever show symptoms of myoclonus or any neurological disorder. Thanks for sharing Caleb’s story!

]]> By: Ah Dad... https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/#comment-7834 Wed, 15 Jul 2015 07:10:47 +0000 http://storiesofourboys.com/?p=5568#comment-7834 Good luck, and I’m praying the seizures disappear soon.

]]> By: aprilmomoffour https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/#comment-7654 Tue, 14 Jul 2015 06:37:40 +0000 http://storiesofourboys.com/?p=5568#comment-7654 In reply to Gingi.

Thank you so much. It’s going well. 2 years seizure free is something to celebrate, now that we know that recent activity wasn’t actually seizures. I so appreciate prayers and encouragement. Thank you!

]]> By: aprilmomoffour https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/#comment-7653 Tue, 14 Jul 2015 06:36:14 +0000 http://storiesofourboys.com/?p=5568#comment-7653 In reply to Tamara.

He is. And yes, I think those are pretty good odds.

]]> By: Gingi https://storiesofourboys.com/2015/07/11/eeg-results-i-finally-have-answers-to-my-questions-about-calebs-epilepsy/#comment-7587 Mon, 13 Jul 2015 21:13:13 +0000 http://storiesofourboys.com/?p=5568#comment-7587 Oh man.. I didn’t even realize you were dealing with anything like that!!! I will keep ya’ll in my prayers.. but it looks like you’re doing all the right things! – http://www.domesticgeekgirl.com

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