I was terrified and sad in the beginning too. It felt like I’d been handed a notice on my own mortality and I was defective, likely to expire at any time. Thankfully, I had a rational electrophysiologist who told me, “You are not going to die suddenly. Your heart is structurally healthy, and you are going to be okay.” It was extremely reassuring. Meeting other people living with this diagnosis who had come to terms with it and were living full, regular lives helped me too. I hope you will be encouraged to read that I have had this for seven years now. Some years it almost goes away completely. Then it will schizz out into NSVT occasionally, usually if I’m stressed and tired. Get lots of sleep and keep your doctor appointments. Once you adjust to the idea of this I think you will feel so much better and empowered to take care of yourself.

Hi April,
My name is Daniela and I’ve been diagnosed with NSVT 3 weeks ago, I am terrified and depressed.

Gosh every time you move is super hard. I liked the new version of yourselves post and think that is kind of a “fun” opportunity to be who you want to be. I love that park and wish we had one like it. The sun would melt it, but it would be fun for a bit 🙂

Take care friend and I hope that things settle in and start to feel more like home soon.

Thanks Deb! It was very reassuring that I don’t have to worry about my heart. And moving us one of those things that takes time and work. A year from now I will feel much differently about it and have some new trifle to think on. Ha!

xx