Exciting News for Us: Epilepsy Update

 

seizure free

Caleb, with his dad and DaddyO. Caleb’s new neurologist actually looks so much like DaddyO, Caleb and I laughed that they are probably related.

I only have 10 minutes to type out this update, so I’ll cut straight to the chase.

WE ARE SO EXCITED!!!

After years of having to give Caleb seizure medication, he many finally get to come off of it. Caleb is so excited that he is actually willing to endure another EEG. He is no fan of EEGs. Let me tell you. He is permanently weary of all things doctor related due to all of the medical tests he’s had to do for the seizures. ugh!

But next Saturday Caleb will have this EEG, and so long as it comes back normal, Caleb will be declared well!!!!! He will no longer be on Keppra.

He still has a 30% chance of having another seizure, which is far higher than the average Joe, so we still have to keep an eye out, but since he’s been three years without having one, the benefits no longer out-weigh the side effects.

It’s an exciting time for us and especially for Caleb. He hates taking Keppra. I’ll keep you updated. October 15th is the big day!

Caleb, back when he was 4, which was when he was having seizures regularly. We are so excited to put to see him doing well.

Caleb, back when he was 4, which was when he was having seizures regularly. It is such a blessing to see him doing better.

 

 

11 comments